Esme’s Umbrella is committed to research into Charles Bonnet Syndrome
We want to bridge the gap between cutting-edge research and those living with CBS, offering a glimpse into ongoing studies, breakthroughs, and potential future treatments.
CBS Research 2015-2023
Funding sourced or co-funded by Esme’s Umbrella (Charity #1197087)
-
The world’s first Charles Bonnet Syndrome research was led by Professor Dominic ffytche at King’s College London. This produced the SHAPED report
-
An overview of psychological and social factors in CBS
-
Study in how Stress and Isolation exacerbate Charles Bonnet Syndrome
Esme's Umbrella Researchers
Understanding Charles Bonnet Syndrome in Children: A Study by Lee Jones, Lara Ditzel-Finn, Leanne McDonald, and Mariya Moosajee
We are pleased to share the paper authored by Lee Jones, Lara Ditzel-Finn, Leanne McDonald, and Mariya Moosajee, which explores the phenomenology of Charles Bonnet Syndrome (CBS) in children. CBS, characterised by the presence of visual hallucinations secondary to visual impairment, is often under-recognised in younger populations. This study aims to deepen our understanding of CBS in children, specifically focusing on the nature of these hallucinations and the emotional impact on both the children and their families.
The research highlights the support needs of those affected by CBS, offering valuable insights into the unique challenges faced by families navigating this condition. The study design was based on semistructured qualitative interviews, providing a detailed and empathetic perspective on the lived experiences of patients and their families.
The button below will allow you to download the paper, which offers essential information for healthcare professionals, researchers, and anyone interested in learning more about CBS in children.
Download here